I’m so excited to share this conversation with you all, the part 2 for the mini interview on Huntington’s Disease. One of my hopes for Millennial Caregivers is to share conversations with caregivers, patients, and medical professionals on all things caregiving.
This is a two-part series*. In Part 1, I spoke with Bisena Bulica, DO, a neurologist at Henry Ford Hospital in Detroit, MI. In Part 2, I chat with Jessica and DJ and their roles as caregiver and patient in a relationship. May is Huntington’s Disease Awareness Month, and I’m glad to have participated in these insightful conversations and learned so much about this disease.
I was immediately interested in talking with DJ and Jess. After all, what is the impact of being a caregiver in a relationship? My experience of caregiving is through helping my mom during her cancer diagnosis and treatment—a vastly different experience from helping a partner. Speaking with DJ and Jess left such a profound mark on me. The love they have for each other is so clear from the very beginning, and hearing them share their story on their own terms was lovely.
Caregiving is a journey for everyone involved. I’m so glad to have had the opportunity to speak with Dr. Bulica and Jess and DJ. I hope you’ll like them as much as I did and listen to their story, which needs to be heard. Below’s a little preview and shows how DJ and Jess met:
Madeline Wahl is a recent graduate with an MLitt in Fantasy Literature from the University of Glasgow in Scotland. She is a writer, solo traveler, and millennial caregiver to her mom, who recently passed from terminal cancer. Her writing has appeared on Reader's Digest, HuffPost, Red Magazine, and McSweeney's, among others. She is working on her first novel in YA Fantasy and her first nonfiction book proposal on millennial caregiving.
*Huge thanks to Grayson for reaching out and Imogen for making these conversations happen.
Share this post